The UK charity for Waldenstrom’s macroglobulinaemia – a rare type of blood cancer
Support Line: 0300 373 8500

Mental Health & WM

You’re not alone if you’re struggling with your feelings and emotions whilst living with Waldenstrom's macroglobulinaemia.

Many WMers report that they are struggling or have struggled with their mental health because of their diagnosis. This is perfectly normal, and there is plenty of specialist help out there so you can feel more like yourself again.

There is right way to feel – you may be anxious, stressed, angry, sad, depressed or any other number of emotions. You might feel different as soon as you’re diagnosis, it or may be months or even years after your diagnosis.

Anxiety is a very common theme among people with WM, and we have a whole page dedicated to coping with anxiety here

However you feel, and whenever you feel it, here are some ways to cope:

Talk it out

Whether this is with a family member, close friend or healthcare professional, sometimes getting your feelings out can help lighten the load.

Ask for practical help

Sometimes getting help with everyday tasks like chores, cooking or the weekly shop can help you feel less overwhelmed.

Join a support group

Talking to other people living with WM and who have gone through similar situations and can offer practical and emotional support in a way other people might be able to. You can find more about WMUK’s support groups and forums here.

Keep active

It might be harder due to your symptoms or side effects of treatment, but it’s important to keep active. Not only does this improve your physical strength, but it helps improve mental health as well.

Meditation and mindfulness

Some people find these relaxing techniques helpful in lowering stress and anxiety. WMUK runs free mindfulness sessions every month. You can find the next session here.

Learning to live with a rare cancer like WM

Learning to live with a rare cancer like WM can affect much more than your physical health. Check out the latest mental health resources to help support your journey and help you learn to live well with WM.

It’s important to learn to live well with Waldenstrom’s macroglobulinaemia for your mental health, so we give you a little insight into how you can lead a healthy and active life with your new diagnosis.

Visit our page to learn about diet, exercise, mindfulness, working and vaccinations. We offer advice and support as well as directing you to other resources and organisations that may be helpful to you.

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Getting help

If you feel very anxious or feel you might be depressed, speak to your healthcare team. There are different services and treatments available to you, and your doctor will be able to advise and refer you where necessary.

You can also find help through other charities such as:

  • Mind – support and information on mental health conditions
  • Maggie’s Centres – support for people with cancer, including online or in one of their centres based in hospitals
  • Macmillan Cancer Support – downloadable guides for people living with cancer, or in their centres based in hospitals

 

Helpful Resources

WM Webinars, Documents & Links

published:13/04/2023
Eleanor Spink from Maggie’s Charity, discusses your employment rights as a person living with WM
published:20/03/2023
Jo Ham discusses emotional wellbeing and resilience with the WM community
published:15/10/2022
Dr Iain Jordan on how to look after your mental health when you or a loved one is diagnosed with WM.
published:19/06/2020
Additional question recorded at the WMUK and Lymphoma Action webinar on 19 June 2020.
published:19/06/2020
Additional question recorded at the WMUK and Lymphoma Action webinar on 19 June 2020.

WM Documents for Mental health

Newly Diagnosed Booklet
A guide to help you understand your diagnosis and get the support your need
The Emotional Needs Audit
This questionnaire helps you think about how your life could be improved.
5 Steps to control worrying
Follow these 5 steps, from counsellor Jo Ham, to take control of your worries.
Emotional wellbeing and resilience
Tips to boost your wellbeing from Jo Ham, accredited therapist.

Useful Links for WM

Useful links for people with Waldenstrom’s macroglobulinaemia who are struggling with their mental health.

Carers UK
A charity more focused to family members/carers on how to cope with caring for some one with a long-term condition.
Penny Brohn UK
A charity which focuses mainly on ‘Living Well with Cancer’ and has lots of resources around this.
Maggie’s Charity
A brilliant charity who focus on the non-clinical aspects of cancer including, finances, practical support, psychological support as well as support for carers.

Around the Web

June 5, 2023

10 Habits for a Healthy Life with Waldenstrom Macroglobulinaemia

WMUK relaxation podcast may help

Mental Health
Relax and glide on a magic carpet - listen often, not driving
🍁 Autumn Relaxation 🍁 please don’t listen while driving
senses springtime relaxation 🌸 don’t listen while driving
Winter wonderland 🌲 don’t listen while driving 1