Spring Well-Being: A Fresh Start for Mind, Body and Home
Spring is the perfect time to pause, reset and make space for simple moments of wellbeing each day to help
Support Line: 0300 373 8500
Waldenstrom’s macroglobulinaemia (WM) and other types of lymphoplasmacytic lymphomas (LPL) are rare types of blood cancer. We’re here to give everyone affected by WM and LPL the knowledge and support they need to live longer, better quality lives.
We help people with Waldenstrom’s macroglobulinaemia (WM) & lymphoplasmacytic lymphoma (LPL), rare forms of blood cancer to live longer, better-quality lives.
We do this by providing essential resources for patients, families and healthcare professionals. Whether you need to speak to an expert, want to learn more about the condition, or are a health care professional who wants to support a patient more effectively, we can help.
We are the trusted voice of the WM & LPL community, providing expert-led information and resources. As the go-to source for clinicians, we work closely with the NHS and are leading the way in gathering data about the condition to improve understanding and treatment.
Lymphoplasmacytic Lymphoma (LPL) is a rare, slow-growing blood cancer. Waldenstrom’s macroglobulinaemia (WM) is the most common type of LPL. WM and non-WM LPL belong to a group of cancers known as ‘Non-Hodgkin lymphomas’. There is no cure for WM or LPL at the moment, but there are many effective treatments.
We’re here to help people with WM and LPL live longer, better lives – with WMUK supporting them every step of the way
Want to understand more about WM and LPL and what to expect at each stage of your journey? With the help of our community of experts and patients, we’ve created a range of resources to guide you along the way.
We’re ready to help you live well with WM & LPL – whether you’re looking to join a Support Group, learn how to manage your symptoms, or get one-to-one advice through our Support Line.
Take a look around and explore all the extra information and support we offer. From details on the latest clinical trial to guidance for friends and family, you’ll find what you need right here.
We are funded completely by generous donors like you. Your gift will ensure we can continue answering calls, producing resources, coordinating groups and advocating on behalf of WM & LPL patients at the highest level.
Be the first to know about new resources, events and other WM & LPL by signing up to receive our communications.
Our small staff team include LPL & WM specialist nurses who work closely with our clinical advisory committee which includes experts in haematology, data science and oncology. We also consult closely with our patient advisory group to ensure the needs of patients are at the heart of everything we do.
The WMUK Board is responsible for the direction and governance of the organisation. Board members include experienced leaders and specialists who bring diverse expertise to steer WMUK towards achieving its mission.
The Patient Advisory Group (PAG) comprises 20 volunteers with direct experience of WM & LPL. Members review patient information, give feedback on new resources, and contribute to new programmes and long-term strategies.
WMUK’s core team manages the day-to-day running of the charity and its activities. The team develops resources, connects with healthcare professionals, produces information, and provides direct support to WM & LPL patients and their families.
Spring is the perfect time to pause, reset and make space for simple moments of wellbeing each day to help
WMUK is formally extending its support services to include all people affected by all types of lymphoplasmacytic lymphoma (LPL) ensuring
The Rare Cancers Act is an important moment for people diagnosed and living with rare cancers, including WM and LPL.
Use the below link to join Keith for the South West Support Group meeting.
Join New Forest Area
Saturday 8th August
12 – 3 pm
Due to limited spaces available, more detailed information will be provided upon enquiry – please email support@wmuk.org.uk for more information.
Join fellow Wmer Sue on this gentle chair Yoga and Relaxation session. Please have to hand some water and a blanket. Use the following link to register.
Register
Wednesday 12 August 6:00-7:00pm
Join us for this webinar on Prehabilitation to share information and advice to support you on your journey.
June has 33 years’ experience working in and with the NHS as a Dietitian, service and AHP professional lead, general manager for several service areas within the acute setting and national lead for several successful large scale change programmes.
June has over 10 years’ experience working as Head of Therapies for large acute Trusts. These roles involved both the strategic and operational management of one of the largest therapy services in the UK as well as being at the forefront of integrating research, service delivery and education across AHP services.
June has extensive experience in service and workforce transformation across clinical services delivered by nurses, allied health professionals and the wider workforce.
June is National Lead Allied Health Professional and Nursing Advisor for Macmillan Cancer Support, National ACCEND co-lead and Director of Allied Health Solutions.
Register Monday 7 September 7:00-8:00pm
This meeting will be hosted by Carley Gray the Community Support Navigator, drop in for 5 minutes or join for the full hour to chat about WM your journey and plans for the group. Use the link below to join.
Join
Drop in for 5 minutes or stay for the hour we are here to chat, ask questions or just listen. You will find support from people who understand.
Join here Drop in for 5 minutes or stay for the hour we are here to chat, ask questions or just listen. You will find support from people who understand.
Join Here