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Waldenstrom’s macroglobulinaemia is rare type of cancer and should be treated by healthcare professionals who have expert knowledge and experience of caring for people with the disease.
While there aren’t any specialist centres treating Waldenstrom’s macroglobulinaemia in the UK, there are a handful of WM expert clinicians.
Many WMers are treated in local hospitals. Whilst being treated locally has benefits, the WM Guidelines recommend that clinicians work with WM experts when caring for people with the disease. WM expert clinicians have more experience of treating Waldenstrom’s macroglobulinaemia, and will be more up to date on the newest treatments and clinical trials available to WMers.
Your clinician can refer you to these specialists for your treatment. Sometimes, travelling to a centre with a WM expert isn’t possible, for example because of where you live. In these cases, your clinician can still work alongside the WM expert to provide you with the most up to date treatment, so you can stay at your local hospital.
If you’re worried about the care you’re getting, or would like the reassurance of an expert’s opinion, you can ask your clinician for a second opinion. This is where your current clinician refers you onto an expert who can give their professional opinion on your treatment and care.
You may decide that you want to be cared for under the expert, or they might offer the reassurance you need about your current care or treatment plan.
Some people with Waldenstrom’s macroglobulinaemia develop other conditions, for example Bing Neel Syndrome or Peripheral Neuropathy. In these cases you should be referred to a specialist for treatment of these specific conditions.
If you want to learn more about WM specialists, including finding one, please contact us. We cannot refer you, but will be able to sign post you to help you get the right care.
