Your journey with WM

Whether you’ve just been diagnosed, have been on active monitoring for a while or have just been told you need some treatment, we’re here to help. Your journey with Waldenstrom’s macroglobulinaemia will be entirely personal to you, but we’ve tried to make this section as easy to navigate as possible so you can jump straight in and find the information you need, depending on where on your journey you are.

What is WM?

Waldenstrom’s Macroglobulinaemia (WM) is a rare blood cancer and although its presence will be life long, life can continue to be rewarding for those of us that live alongside WM. We understand that your journey will be unique, and you will inevitably face ups and downs along the way.

Newly diagnosed

If you’ve just been diagnosed, or your clinician has mentioned WM and you’re looking for information, this is the section for you. You can find out everything you need to know about WM (without overloading yourself). We also have a Newly Diagnosed Support Group to offer support at the beginning of your WM journey.

After your diagnosis

Receiving a diagnosis can be overwhelming and we know it can be a worrying time for you and your family. What happens next is dependent on many factors which your consultant will discuss with you, but here’s an overview of what may happen next.

Living well with WM

Like any diagnosis, being told you are living with a rare cancer can be a shock. We’re here to support you every step of the way – and it’s important to learn to live well with Waldenstrom’s macroglobulinaemia. We hope these pages give you a little insight into just how you can lead a healthy and active life with your new diagnosis.

I'm on active monitoring

Active monitoring, or ‘watch and wait’ is when your WM is manageable and not in need of treatment or intervention and is monitored regularly by your healthcare team. Find out more about what active monitoring is and why it may have been recommended for you.

Treatment options

Just as every one of us is different, the best course of treatment will vary from person to person depending on a number of factors. Find out more about the different treatment options available for Waldenstrom’s macroglobulinaemia and what might be involved.

Following treatment

Knowing what to expect in the days, weeks and months after treatment can be a difficult time whilst your body is responding and coping with the side effects. Find out more about how you’ll be monitored and what to expect following treatment

We're here for you

Our Support Line will be open on Monday 9am-2pm and Thursday 1pm – 5pm – the number is 0300 373 8500. If you require support outside of those times, please contact us. We aim to respond to all enquiries within 48 hours.