Our specialist support groups are made up of people from across the UK, connected by a united common issue or goal.

Join one of these welcoming groups to meet others who are experiencing similar situation to you, get advice or just share worries. Contact the group leader to find the next meeting.

Mothers’ support group

For mothers who also live with WM. Whether your children are all grown-up or are still small, this is a place to meet other mums who know what you’re going through.

Group leader: Debra Ziff

Contact: support@wmuk.org.uk

Fathers’ support group

For fathers who also live with WM. Whether your children are all grown-up or are still small, this is a place to meet other dads who know what you’re going through.

Group leader: Bob Perry

Contact: support@wmuk.org.uk

Supporter of people living with WM

A special group for people supporting loved ones with WM, this is a place for family members, friends and carers to come together to learn and share experiences.

Group leader: Elaine Clinton

Contact: support@wmuk.org.uk

Under 55s group

Are you under 55 and living with WM? We know that living with the disease in your 30s, 40s and 50s can present its own challenges, with balancing work and children still living at home to mention a few things. Our group for under 55s is a place where you can meet others in a similar situation.

Group leader: Bob Perry

Contact: support@wmuk.org.uk

Bing Neel Syndrome support group

Bing Neel Syndrome (BNS) is a condition related to Waldenstrom’s macroglobulinaemia. This support group is for anyone living with BNS, their friends, family or carers.

Group leader: Andy Tudor

Contact: andrewctudor@hotmail.co.uk

Peripheral Neuropathy support group

Peripheral neuropathy is a symptom that can affect people living with WM. Join this group to meet other people living with the symptom. Also open to family members and carers.

Group leader: Bob Perry

Contact: support@wmuk.org.uk

Support for people with amyloidosis

Amyloidosis is a condition that can affect people living with WM. If you or a loved one are living with amyloidosis and are looking for support, you can turn to the National Amyloidosis Centre Patient Forum.

Join here

If you’re in Scotland, you can also join the Scottish forum. Contact Mark McConway for more details.

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