The UK charity for Waldenstrom’s macroglobulinaemia – a rare type of blood cancer
Support Line: 0300 373 8500

Moving the WM community from analogue to digital

What Labour's 10-year strategy for the NHS means to WM patients.

What the government’s 10-year health strategy means for you

On Monday the government announced a new 10-year strategy for the NHS in England, focussing digitisation, creating a single patient record, and moving care into the community. The NHS is consulting with the public and organisations about what changes they’d like to see in the NHS over the next ten years.

At WMUK, we’ve been working hard to create a patient app and are focussing our support programmes on a regional level. Our objective being to ensure that the WM community is equipped to navigate this new era of healthcare.

We need your input to ensure that we can influence the strategy and send a clear message as the voice of people with WM.

From our recent Big WM Survey, we know that there are big gaps in care for the WM community:

2/3 of WM patients have to repeatedly visit their GP before being referred,

1/3 of WM patients are not even being told they had WM at diagnosis

1/4 are not being given any take home information about WM after their diagnosis, despite the vast majority saying they want to know everything they can

With figures like these we know it’s important that the WM voice is heard in this consultation, in order to help everyone with WM to live better with their disease.

We’re holding a webinar to get your input, so we can pull together a submission from the collective voice of the community.

Join us at 7pm on 30 October to learn more about what these changes mean for you, and how you can influence them.

Register for the webinar