Read the latest news and views from WMUK

  • Published On: October 14, 2021

    The letter requests a government lead for immunocompromised people to co-ordinate policies impacting these people and provide clarity around issues such as the roll out of the vaccine.

  • Published On: September 30, 2021

    Join us in wishing our amazing virtual Virgin Money London Marathon runners the best of luck before the big day! Mark, Vicki, Jen and Rachel are all taking on the virtual event [...]

  • Published On: September 22, 2021

    We're excited to invite you to the 2021 WMUK Patient-Doctor Summit

  • Published On: September 21, 2021

    For the second year, WMUK has joined a coalition of 20 cancer charities representing rare and less common cancers, in response to the impact caused by COVID-19.

  • Published On: September 16, 2021

    Thank you so much to everyone who participated in our recent Patient Diagnosis Survey - you voice has been heard.

  • Published On: September 16, 2021

    The government has announced an end to the shielding programme, which gave specific guidance to people considered clinically extremely vulnerable (CEV) to the COVID-19 virus, including people living with WM.

  • Published On: July 19, 2021

    Here’s a message from our Chief Executive, Jane Nicholson, in relation to ‘Freedom Day’. “Whilst for many people in the UK, today is ‘Freedom Day’, we know that for people living with cancer, [...]

  • Published On: July 15, 2021

    The Government has released extra guidance for people defined as ‘clinically extremely vulnerable’, from 19 July. If you are clinically extremely vulnerable, you will have received a letter from the NHS advising you as [...]

  • Published On: July 12, 2021

    People living with Waldenstrom’s macroglobulinaemia are advised by WM experts to take extra precautions, even if they have received both doses of the Covid vaccine. The advice – which has remained the same [...]

  • Published On: July 12, 2021

    Catch up on our latest webinar on clinical trials. Dr Jaimal Kothari, clinical lead for the late phase clinical trials group at Oxford University Hospitals, talks about clinical trials and what they mean [...]

  • Published On: June 15, 2021

    Professor Guy Pratt joined us to explain what the WM Guidelines are. Related links What are clinical guidelines - our breakdown

  • Published On: May 18, 2021

    Your Content Goes Here Jo is a qualified psychotherapist who will be running WMUK's mindfulness sessions. Jo is an experienced Human Givens therapist, supervisor and trainer, who enjoys passing on coping skills in [...]

  • Published On: May 18, 2021

    Missed our webinar on COVID-19? We recorded it for you. In the webinar, Dr Dima El-Sharkawai, Consultant Haematologist at the Royal Marsden, explains the factors that can put people at risk from COVID-19, as well as explaining the latest research into the vaccination efficacy and how this might affect people living with Waldenstrom’s macroglobulinaemia.

  • Published On: May 10, 2021

    Your Content Goes Here Join Consultant in Psychological Medicine, Dr Iain Jordan, and our Patient Support Manager, Bob Perry, as they talk about strategies to cope with stress and anxiety. For more [...]

  • Published On: April 27, 2021

    Your Content Goes Here Watch our latest webinar What is WM? Consultant Haematologist and WM expert, Dr Helen McCarthy answers your most frequently asked questions live, including WM diagnosis, what the symptoms are, [...]

  • Published On: April 22, 2021

    Following the recent research published on the COVID-19 vaccination’s effect on cancer patients, we’ve received an increase in enquiries from people affected by WM, specifically about whether you should be worried about the amount of time between the doses. We spoke to Consultant Haematologists and WM experts, Dr Dima El-Sharkawi and Dr Shirley D’Sa, for the latest advice for WM patients.

  • Published On: April 6, 2021

    Your Content Goes Here Missed our Cardiology webinar with Dr Chris Critoph? Don't worry, we saved it for you. We were delighted to welcome Dr Chris Critoph to the first in our series [...]

  • Published On: April 1, 2021

    Your Content Goes Here We're cheering on Mike Fitzgerald, who is taking on a mammoth cycle ride in memory of his mum, Lorraine. "One of the many difficult and frustrating experiences for anyone [...]

  • Published On: April 1, 2021

    Your Content Goes Here Bob Perry is our new Patient Support Manager. We're delighted to welcome Bob onto the WMUK team, where he will continue to manage and grow the WMUK virtual and [...]

  • Published On: March 30, 2021

    Your Content Goes Here From 1 April, the Government has told people who are ‘clinically extremely vulnerable’ that they will no longer have to shield. We understand that this may be a worrying time, [...]

  • Published On: March 29, 2021

    Your Content Goes Here WMUK are pleased to launch a new series of webinars featuring top specialists who will answer your questions. The live webinars will take place on Zoom, and participants will [...]

  • Published On: March 29, 2021

    Your Content Goes Here Dr Jaimal Kothari is a WMUK trustee, clinical lead for the late phase clinical trials group, and Consultant Haematologist at Oxford University Hospitals. He spent some time with us, talking [...]

  • Published On: March 29, 2021

    Your Content Goes Here We're delighted that the Government has agreed to prioritise the vaccination of adults living with adults who are immunosuppressed, including WM patients, in England. Adults aged 16 or older [...]

  • Published On: March 18, 2021

    Your Content Goes Here The Government has announced that people classified as 'clinically extremely vulnerable' will no longer be advised to shield from 1 April 2021. In line with the government’s ‘COVID-19 [...]

  • Published On: March 15, 2021

    Your Content Goes Here A recent study suggests that blood cancer patients might not have a good response to the first dose of the COVID-19. We understand that this might make worrying reading for [...]

  • Published On: March 3, 2021

    Your Content Goes Here Missed the latest WMUK e-newsletter? Get it here. From insight into the life of a WM clinician, to updates from the IWMF and upcoming virtual events, you can [...]

  • Published On: March 1, 2021

    Your Content Goes Here Ever wondered what a day in the life of a top Waldenstrom's macroglobulinaemia clinician is like? Dr Dima El-Sharkawi (Consultant Haematologist at the Royal Marsden) gave us insight. [...]

  • Published On: February 24, 2021

    Your Content Goes Here Neil and Laura Lawrence took on the very first virtual Virgin Money London Marathon in October last, raising £300 for WMUK. When 2020’s Edinburgh Marathon was cancelled, Neil [...]

  • Published On: February 16, 2021

    Your Content Goes Here Around 4,000 people are currently living with Waldenstrom's macroglobulinaemia. As a rare disease, it's vital we raise awareness so that these people get the care and treatment they need. [...]

  • Published On: February 10, 2021

    Your Content Goes Here Join 50,000 runners taking on the Virtual London Marathon this October, and raise vital funds for people affected by Waldenstrom's macroglobulinaemia. Run, walk or jog 26.2 miles. You choose [...]

  • Published On: February 10, 2021

    Your Content Goes Here You can now book your COVID-19 vaccination appointment online. If you haven't yet been offered a vaccination appointment, and are over 70 or clinically extremely vulnerable, you can now [...]

  • Published On: January 19, 2021

    Your Content Goes Here Missed out on the first WMUK e-newsletter of the year? Don't worry, we've saved it for you. Click here to catch up on all the news, from patient [...]

  • Published On: January 19, 2021

    Your Content Goes Here After the closure of Yahoo groups, we've been working with volunteers to re-establish a new email forum for WM patients, and are pleased to announce that a new forum [...]

  • Published On: January 5, 2021

    Your Content Goes Here England and Scotland have both entered national lockdowns in response to the rise in COVID-19 cases throughout the UK. People who are in the clinically extremely vulnerable group are [...]

  • Published On: December 31, 2020

    Your Content Goes Here We're so grateful to everyone who participated in the 20 for 20 challenge, raising vital funds for people affected by Waldenstrom's macroglobulinaemia during this difficult year. Two of [...]

  • Published On: December 21, 2020

    Your Content Goes Here Following the Government announcements over the weekend, if you are living in a Tier 4 area in England, clinically extremely vulnerable people are advised to follow new shielding measures. [...]

  • Published On: December 9, 2020

    Your Content Goes Here Missed out on our December e-newsletter? We've got you covered. You can catch up with all the latest news from the Waldenstrom's macroglobulinaemia community here. Related linksWhat is Waldenstrom's [...]

  • Published On: December 9, 2020

    Your Content Goes Here People, especially those in the clinically extremely vulnerable category, are advised to take a vitamin D supplement throughout the winter months. Vitamin D keeps the bones, teeth and [...]

  • Published On: December 7, 2020

    Your Content Goes Here We’ve worked with our WM specialists Dr Dima El-Sharkawi (Consultant Haematologist at Royal Marsden Hospital) and Dr Shirley D’Sa (lead WM clinician at UCLH) to answer some of your top [...]

  • Published On: December 2, 2020

    Your Content Goes Here The United Kingdom is the first country in the world to approve a vaccine for COVID-19 for widespread use. Roll out of the Pfizer-BioNTech COVID-19 vaccine could start [...]

  • Published On: November 30, 2020

    Your Content Goes Here This #GivingTuesday, you can help us continue to be there for people affected by Waldenstrom's macroglobulinaemia. Head to our page to learn how you can support. This year [...]

  • Published On: November 10, 2020

    Your Content Goes Here Missed WMUK's November e-news? Get it here. Get all the latest news and fundraising stories from the Waldenstrom's macroglobulinaemia community in our e-news. If you missed our latest update [...]

  • Published On: October 9, 2020

    Your Content Goes Here We've teamed up with 19 other rare and less common cancer charities in the 20 for 20 Challenge. Take on 20 challenges in 20 days this autumn and raise funds [...]

  • Published On: October 8, 2020

    Your Content Goes Here WMUK welcomes the decision by the Scottish Medicines Consortium (SMC) to make ibrutinib available for WM patients in Scotland (with certain restrictions). The Scottish Medicines Consortium (SMC) has [...]

  • Published On: October 5, 2020

    Your Content Goes Here “The day-to-day challenges of living with a rare cancer that no-one seems to have heard of, let alone pronounce, has had an overwhelming effect on our lives.”We’re really grateful [...]

  • Published On: September 22, 2020

    Your Content Goes Here Vaccination against seasonal flu offers Waldenstrom's macroglobulinaemia (WM) patients, who often have weakened immune systems, some protection against the most common strains of flu. The flu vaccine is therefore recommended [...]

  • Published On: September 16, 2020

    Your Content Goes Here Our latest factsheet written by Dr Dima El-Sharkawi, WMUK trustee and Consultant Haematologist at the Royal Marsden Hospital, London, looks to answer some of the questions currently being asked [...]

  • Published On: September 14, 2020

    Your Content Goes Here If you missed our latest e-news sent out on the 13 September 2020, you can download it here! Download our September e-news here to read our latest WM [...]

  • Published On: September 13, 2020

    Your Content Goes Here We are very keen to hear from any WM patients who are currently taking zanubrutinib in the UK. If you would be prepared to share your experiences to inform [...]

  • Published On: September 9, 2020

    Your Content Goes Here Congratulations from everyone at WMUK to the incredible R4AR JOGLE 2020 cyclists on completing their John O’Groats to Land’s End challenge, having cycled through Storm Ellen and Storm Frances [...]

  • Published On: July 16, 2020

    Your Content Goes Here We urgently need patients with Waldenstrom's macroglobulinaemia to join our Rory Morrison WMUK Registry - Quality of Life Project, collecting data around experiences of living with WM and helping us [...]

  • Published On: June 26, 2020

    Your Content Goes Here A recording of our joint webinar "WM and COVID-19" held in partnership with Lymphoma Action on Friday 19th June, is now available for those who were not able to [...]

  • Published On: June 24, 2020

    Your Content Goes Here Advice for Waldenstrom's macroglobulinaemia (WM) patients from Dr Shirley D’Sa, WMUK trustee and lead WM clinician at UCLH, in response to the Government's plans to ease shielding for people [...]

  • Published On: May 7, 2020

    Your Content Goes Here Dr Shirley D'Sa, WMUK Trustee and Consultant Haematologist and WM lead at University College London Hospitals, explains the science behind the current COVID-19 pandemic and what we know about [...]

  • Published On: April 29, 2020

    Your Content Goes Here The COVID Symptom Tracker developed by ZOE Global Limited, alongside King's College London, to study the symptoms and spread of COVID-19, have now partnered with the UK's leading charities [...]

  • Published On: April 20, 2020

    Your Content Goes Here Research amongst WM patients with COVID-19 shows interesting findings.There is a suggestion that BTK inhibitors such as ibrutinib, acalabrutinib and zanubrutinib may provide favourable suppression of the immune system [...]

  • Published On: February 9, 2020

    Your Content Goes Here Tell us your experiences of treatment in Scotland to inform our work with the Scottish Medicines Consortium WMUK is contributing evidence to the Scottish Medicines Consortium's forthcoming appraisal of [...]

  • Published On: February 9, 2020

    Your Content Goes Here As part of our ongoing commitment to support people with WM and their families, WMUK are proud to announce the launch of our newly redesigned website for the WM [...]