About WMUK

WMUK is the only charity in the UK focused solely on Waldenstrom’s macroglobulinaemia (WM), a rare type of blood cancer.

Our vision is that people affected by Waldenstrom's macroglobulinaemia live longer good quality lives, being supported every step of the way by WMUK. Our goal is to be the informed voice of WM in the UK.

WMUK consulted with the WM community through working groups and surveys to better understand the community’s needs and identify key areas for development. The result: WMUK’s Strategy. This document outlines our areas of work for the next 5 years, how we plan to build on our existing services, reach more patients and improve access to care

We rely solely on voluntary donations to fund the charity’s work. This year, we’re aiming to raise more than ever, so we can spend more more support services and research.

2020-21

2023-24

We need your help

We’re proud of how far we’ve come, but there is still so much more to do. We simply can’t do it without your help. Please consider donating today so that we can ensure that no one with WM feels alone, without the information they need to live well with the disease.

Meet our Experts

WMUK is best known for providing support to those affected by Waldenstrom’s macroglobulinaemia, but we are also engaged with the research community, healthcare professionals, & create education materials to raise awareness of this rare & incurable cancer, and improve patient care.

We are incredibly grateful, & fortunate to have experts in haematology, data science, oncology, & other fields willing to contribute their time & experience to guide & help us achieve our shared goals more effectively. The links below provide more information about these exceptional people who are helping WMUK, and helping people to live well with WM.

Clinical Advisory Committee

WMUK’s Clinical Advisory Committee is a distinguished group of medical consultants and specialists dedicated to supporting WMUK. Their expertise ensures that WMUK provides the most accurate and current information to its community. Through rigorous reviews, responsive support, and educational webinars, they uphold WMUK’s reputation for excellence. Learn more about their vital role in advancing WMUK’s mission.

Governance Committee

The Governance Committee is dedicated to ensuring WMUK’s compliance with data protection and privacy standards. They oversee data usage, quality improvements, and resource allocation in line with WMUK’s strategic objectives. With extensive experience in health IT, clinical database systems, and registry platforms, the committee members bring a wealth of knowledge and expertise to WMUK’s mission of achieving world-class data on WM. Learn more about the Governance Committee’s crucial role in maintaining data integrity and excellence at WMUK.

Patient Advisory Group

The Patient Advisory Group (PAG) plays a vital role in shaping the WM community and empowering patients by providing valuable feedback and input on WMUK’s projects and information. Comprising around 20 dedicated volunteers diagnosed with WM or LPL, the PAG ensures the patient voice remains central to WMUK’s strategy and initiatives. Members review patient information, offer perspectives for external purposes, and contribute to new programmes and long-term strategies. Discover how the PAG’s crucial contributions help WMUK meet its goals of empowering patients and families.

Research Committee

The Research Committee at WMUK ensures that proposed projects align with the charity’s mission, have adequate resources, and yield useful outcomes. They develop and monitor the WMUK Research Strategy. Comprising experts in haematology, patient safety, epidemiology, and health policy, the committee drives impactful research initiatives. Discover how the Research Committee advances WMUK’s mission through dedicated and strategic research efforts.

WMUK Board

The WMUK Board, composed of experts from our committees, governs the charity by defining its long-term direction and ensuring it operates effectively and legally. The Board’s primary duty is to protect WMUK’s best interests. This esteemed group includes experienced leaders and specialists who bring diverse expertise to steer WMUK towards achieving its mission. Explore the strategic and governance roles of the WMUK Board in driving the organisation forward.

WMUK Team

WMUK’s core team is a dedicated group of highly skilled and experienced professionals essential to the charity’s success. They perform crucial roles ranging from leadership and patient support to data management and governance. Their expertise and commitment ensure WMUK runs smoothly and effectively, making significant impacts in the WM community. Discover the invaluable contributions of our team in advancing WMUK’s mission.