After talking to the WM community, we know that many people living with WM struggle to access expert advice and support when they need it. That's why we're launching the WMUK Support Line - a vital service for people affected by Waldenstrom’s macroglobulinaemia, their families and friends. Staffed by a WM healthcare professional, it will be open to anyone who needs expert information, advice, or simply a listening ear.
To get the support line up and running as soon as possible, we’ve launched Walk for Waldenstrom’s. We’re calling on the WM community to come together and raise £17,000 in this simple and fun event – with every penny going towards the Support Line funding.
Vicky Towers, a WM patient, says, “The WMUK Support Line would not just empower me but give me hope in my darkest moments, and I’m sure it would do the same for so many other patients and their families. That’s why I’m walking for Waldenstrom’s.”
Jane Nicholson, WMUK CEO, says, “People affected by WM and their families tell us that WM-specific information is sorely missing. Without a reliable and up-to-date source of information in the UK, people are left in the dark about their disease, causing anxiety and stress. I’ve spoken to people who suffered unnecessarily with debilitating side effects, not knowing these were a symptom of WM and could be treated, and friends and family who are worried about their loved one but don’t understand the disease and aren’t sure how to provide the best support.
“The WMUK Support Line will be here for every one of these people. No matter what their question, their worry or circumstances, they’ll be able to find answers and get reassurance.”
The WMUK Support Line will be confidential and open to anyone who needs it. Our aim is to launch the service in late-2022, funds allowing. Every penny raised from Walk for Waldenstrom’s will go towards setting the service up.
Find out more about Walk for Waldenstrom’s
Read Vicky’s story