Support Line: 0300 373 8500
This year WMUK is bringing personalised patient support and expert information to your region.
Learn about clinical trials for Waldenstrom’s macroglobulinaemia, find out how to take part, & discover trials that are currently running in the UK
Waldenstrom’s macroglobulinaemia (WM) is a rare type of blood cancer. It has its own distinct characteristics that require specialised treatment and care. Our vision is that people affected by WM live longer, good quality lives supported every step of the way by WMUK.
Working hard to provide up to date information and personal support for people affected by Waldenstrom’s macroglobulinaemia (WM), a rare form of blood cancer.
We aim to improve understanding and access to treatment and care to ensure everyone with WM can live longer, better quality lives.
We do this through the dedication and support of donors and fundraisers, without whom the charity and its resources would not exist. Help us to continue helping the WM community here.
WMUK understand the challenges and uncertainties that come with a Waldenstrom’s macroglobulinaemia blood cancer diagnosis. That’s why we offer a range of support services tailored to meet the diverse needs of patients and their families.
Information and Resources: Explore a wealth of information and resources on Waldenstrom’s macroglobulinaemia, covering treatment options, specialist centres, and invaluable guidance for patients, caregivers, and those newly diagnosed.
Community and Support: Join our nurturing community through our support groups and online Facebook groups. Reach out to our dedicated helpline team for personalised support and guidance.
Updates and Events: Stay updated on our latest news, campaigns, and events, including regular online meet-ups, expert webinars, and the annual patient forum.
Find nearby support groups for Waldenstrom’s macroglobulinaemia, or contact our support line.
WMUK telephone support line offers support, advice, and signposting, Monday to Thursday from 9 AM to 5 PM
Find nearby support groups for Waldenstrom’s macroglobulinaemia, or contact our support line.
Explore our comprehensive guide to receiving treatment for Waldenstrom’s macroglobulinaemia
Your starting to point to find out all about the rare blood cancer, Waldenstrom’s macroglobulinaemia (WM).
Join to chat with other WMers about your experiences. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Zoom Link
This is a taster session run by Allen Kirungi-Enotu, project co-ordinator at the Voices of Hope charity. This is a breathing the course called ABC. If you then wish to complete the course this will be a 4-6 week course, 1 hour a week to be run with the charity. The following has been suggested to help with the session.
Straw, balloon, cotton wool ball, bubbles.
Website
Link to information on the course
Join to chat with other WMers about your experiences of fatigue, a common symptom of WM and its treatments. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes
More Info A 45 minute chair yoga session with Sue Jones, a British wheel of yoga teacher. This session will be gentle yoga and relaxation, with questions available to be taken by the facilitator. Please could we ask for you to be on a stable chair with water to hand if needed, for the relaxation you can be on a comfortable chair. You may need a blanket as your temperature could drop during this section. The session will be online and recorded for future use on the WMUK website.
Register Now Join to chat with other WMers about your experiences on coping with the summertime and the heat. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Join on Zoom
Join nurses Sarah and Amber to talk about what information and support is available to you when and if needed. The role of the charity is to support people in person- led advance care planning and how to make you wishes known. Talking about the ways you can prepare for the end of life, specifically by documenting your wishes.
This can a very daunting subject at any time but with a cancer diagnosis this can be heightened. If you have any questions ready before the meeting please send them to me on carley.gray@wmuk.org.uk and I will forward them over, this can then be put in the agenda.
Register Now Join to chat with other WMers about your experiences. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Join on Zoom Join to chat with other WMers about your experiences. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Join on Zoom
The third part of WMUK’s regional patient summits for 2025 will take place in Belfast, Northern Ireland.
Full details of Northern Ireland WM Patient Summit are yet to be announced but you can register your interest on the link below.
More Info Join to chat with other WMers about your experiences of living alone. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Join on Zoom WMUK round-off 2025’s regional summits, with this event in Birmingham, England
Full details are yet to be announced but you can register your interest on the link below, or attend one of our other regional events in Scotland, Wales & Northern Ireland.
More InfoPhone support, regional groups, & online forums supporting people affected by WM
Answers to some of the most common questions for those newly diagnosed with WM
Symptoms vary from person to person. Here we describe some of the most common symptoms.
Everything you need to know about the different treatments available for WM
An introduction to diet, exercise, symptom management, mental health support, and work-life balance.
A easy to understand explanation of Waldenstrom’s macroglobulinaemia
Explore & download our guides, watch webinars, find factsheets and more in our library
Find out what happens if you’ve been in remission, and have a relapse.
The Registry collates information for medical professionals about this rare cancer
